“Today’s topic is Message Monday. Lets kick off the week by talking about why we are here, in the diabetes blog space. What is the most important diabetes awareness message to you? Why is that message important for you, and what are you trying to accomplish by sharing it on your blog? (Thank you, Heather Gabel, for this topic suggestion.)” Karen Grafeo (Bitter-Sweet Diabetes).
What I’m taking from this one is why do I Dblog? The answer to this is going to have a few sections so I am afraid you are going to have to bear with me for a bit 😉
Here is my first video (I’m pretty sure it came before the blog) explaining what I set out to do. In a bit over a year since I think that the bones have stayed the same but had been significantly added to as I’ve grown. So here is what I am all about now.
First and foremost, it helps me. It helps me to process things that happen with my diabetes, to reach out for help when I need it, to make connections with others going through the same thing or who have been there, done that and can offer me advice and most importantly it makes me feel less alone. There is no community based group for people with T1D in my area so I have grown up not knowing anyone else who was living with the same thing and as a result felt very alone and isolated. Being able to connect with other people (even if I never see them face to face) takes away this feeling of being alone and gives me reassurance that I am not the only one in the world facing this and that there are solutions and other methods that I have not tried.
Second of all when I discovered Dblogs it was amazing, a whole new world opened up for me, suddenly I was not alone and others had gone through or were going through similar things but the only problem was they were all American and the American health system is VERY different to the New Zealand one (the terminology is also different but that is less of an issue). I was discovering all of these management methods and equipment that looked incredible but was not available to me and it was really frustrating. I had no knowledge about the New Zealand health system and what was available and what popular management techniques were. I felt like I was flying blind, I kept asking my team for things that they had never heard of or that weren’t available and it became very confusing. I wanted to provide something for people in New Zealand (and other places if they wanted) that explained what WAS available here and using language that was familiar.
Thirdly I wanted to provide a ‘big girl with T1D’ for younger girls. I never had this growing up and I really feel that it would’ve helped me to see someone older who despite all the T1D stuff was getting on and doing things. I feel I may have felt a bit more like I could do things rather than oh but I have T1D so I can’t.
Okay I forgot one…fourthly, I wanted to provide a place that was open honest and real about T1D. I read so many really inspiring Dblogs where people do incredible things and I get all powered up, ready to take on the world and then I can barely make it to lunch time because I have a series of lows overnight and wake up really high. I applaud those who are able to not let T1D affect their lives in any way but for those of us who it provides a daily struggle that sometimes feels far too much I wanted to provide reassurance that it is not just them and for those who have no concept of what T1D is I wanted to provide a glimce of what it can be like (note I use can because everyone’s experiences are so different).
And finally (I know I forgot two!) I wanted to help. I know how horrible it is to feel alone, like no one gets it, that you work your butt off but everything still goes wrong, and I don;t want anyone to ever feel that they are alone in it all or that everyone else is perfect. I want to help educate those that have never heard about diabetes, to give some insight into what diabetes means, how it can be managed, what it means to live with it and to hopefully remove some of the stigma and myths surrounding it.
Dblogging has become part of my T1D care and I am really thankful to be able to share my experiences, thoughts, concerns, failures and successes with an amazing online community while building some rock solid friendships along the way. Hopefully people read my blog and it helps them out in some way but if no one reads it thats okay because it does my soul good to write it and process it.