Public Lows

This post is ones that is very important for me to write but one that is extremely difficult for me to post. Because of this I ask that you note that this is my personal experience and thoughts on a situation that occurred for me. Everyone has different experiences and thoughts but these are mine so please be gentle with that. Thank you x

Hypos or lows, they happen anytime any place don’t they? We have no or very little control over them. The ones that hurt and scare me the most-the ones that occur in public. 

Yesterday I was out with my new friend from college in a new city where we are both studying for six weeks. I’d tested and was 4.6 so had had some carbs and we started searching for a supermarket to find a cold drink. I began to feel low and explained this to my friend, by the time we reached the supermarket I was struggling with my words and vision and my head was spinning. Upon reaching the drinks isle I was having black spots in my vision and was struggling to stand. Eventually I managed to work out which drink was diet and which had sugar and found the check out, along the way I’d found two king sized crunches, mentos and a creme egg. Reaching the self checkout I somehow managed to scan and pay for it all. By this point I was barely able to see and had pulled my sunglasses down to help and hide me crying. I had black spots in my vision and nothing was in focus; I was beginning to shake, couldn’t speak well and was terrified I was about to collapse. I managed to tell my friend I had to drink there in the supermarket which (thank goodness) she understood and accomodated. I tested and was 2.2 😭  

 My friend sat with me next to the checkout for about 15minutes as I tried to get sugar into myself. She said I was really white and looked terrible. I went through various stages of the shakes and being unable to express what I needed all while trying to remain upright and not cry. 

I was humiliated, my friend had asked to hang out and I needed up turning myself into a public spectical who she had to babysit and there was absolutely nothing I could do about it 😭 I felt like a horrible friend and failure as a person.

With hypos at home at least I can lie down and sob while I go through the shakes and the sugar kicks in without anyone seeing. At least I am not in anyone’s way. At least no one has to know what happened. 

For my friend I am so grateful, I will never be able to tell her exactly what it meant for her to sit there with me, talking and making sure there would be assistance if I needed it. But I really wish she hadn’t had to. I find it terribly difficult to accept that this happened and whether I like it or not will probably happen again.

What can I do? Well I can work as hard as I can to control and maintain my blood sugar. I can carry fast acting glucose with me. I can do my best to explain to whoever I am with what happens when I have a low and what I may need them to do to help me. I can wear medical ID so that their conversation with a 111 operator is a lot smoother should they have to have that conversation. And if the situation does arise I can talk openly and honestly about it and its effects afterwards. And I absolutely have to come to a place were I know I did everything I could to prevent and improve the situation. It’s not much but in these situations it’s all I can do. 

How do you all handle your public lows? What do you have in place in case you have them? 

Thank you for reading my thoughts and experince, as always if you have any questions please fire them at me.

x Hope

Dating Diabetes 1 Year

Yesterday was David and my first anniversary πŸ™‚ We’ve had an amazing first year together, it has been filled with many new experiences, some struggles and a lot of learning. It has been full of ups and downs (most of the downs caused or largely impacted by diabetes).

Today I want to celebrate the fact that diabetes has not broken us, we have and are continuing to beat it. I also want to share with you all some of the things we have found hard about it, learnt about it and what we would recommend others in the same boat do.

What are the biggest things that you have learnt about diabetes in the last year?

David-The mechanics behind the condition, biochemistry and so forth, given that I’m a biologist, it’s interesting to look deeper into how things work like that.

Hope-That diabetes really does affect every single aspect of your life but it is largely up to you if you let it drag you under or push through.

What has been the biggest challenge about dating someone with diabetes?

David-The biggest challenge really is staying on your toes about it, and staying optimistic and positive when your other half is absolutely done with this diabetes malarkey.

Hope-Letting someone in to see what really goes on with diabetes, to see just how it affects everything and not be humiliated or embarrassed at the results. Accepting that you may need help from that person at times, allowing them to give that help and accepting it with good grace even when you wish you didn’t need it.

What is some advice that you would give someone else dating someone with diabetes?

David-Keep two cans of coke accessible at all times, learn as much about it as you can, and don’t panic.

Hope-Be as open and honest as you can about T1D, have the hard conversations, ask the awkward questions and above all do not let it tarnish or control your love for that other person.

BeyondType1 is an amazing organization that is spreading positivity about T1D by featuring one person with T1D each day and explaining what it is that they do to live beyond T1D. This February is their 1st birthday and to celebrate they are doing a Who Do You Love February, were they are featuring one person each day of the month and showing who they love (someone who really supports them with their T1D kinda thing) David and I were lucky enough to be featured and it just so happened that we were featured yesterday on our anniversary! It was just perfect πŸ’—

Here is my Regram of the post.

Thank you for the feature BeyondType1 πŸ‘ŠπŸ» you guys are incredible.

*regram from @beyondtype1 *

beyondtype1: From New Zealand come this Who Do You Love? from@hopie_duncs “When we are together he does all my pump site changes, wakes up at 0400 each morning to test my bloods and whenever I have bad hypos he sits with me and makes sure I do what is needed. He has encouraged me to blog and video about my diabetes to help others and helps me with this process. He is always researching new techniques about diabetes management and helping me review and reassess mine.”

I am so fortunate to have this incredible man in my life, he provides me with strength, guidance, friendship and support. I’ve never had better diabetes control or been happier πŸ’— Good T1D management takes teamwork, lots of it, so does life in general. Relationships are no different, over the past year I have been lucky enough to find an amazing teammate who makes me want to be and do the best I can in all areas of my life, especially in my T1D management. I really cannot thank him enough for the support and acceptance he shows with regards to my T1D. I really hope that everyone with T1D finds a better half like this. It takes work but it is really worth it πŸ˜‰

X Hope

 

 

How to Fix an Animas Pump ClipΒ 

New video is up and as the title suggests it is all about how to fix those loose or completely broken pump clips. 

  
It’s super easy, quick and won’t cost you a thing πŸ‘ŠπŸ»

Here is the link and as always any questions please fire away.

Have a fantastic day all and good luck fixing those clips.

Hope 

Battery Compartment CrackΒ 

  

This evening was a lesson in ‘technology is not perfect’.I have been seeing a lot of posts recently on battery compartments cracking open on Animas pumps. I did a site change two days ago and took care to check my battery compartment along with cartridge compartment and screen. No cracks. Reading one of these posts online I decided to double check mine…I can actually see the battery through this crack 😱 I never saw this crack because my pump skin covered it and honestly I think the reason the pump is still working is because the skin is hugging it together quite tight!

When your life relies on technology you become so confident in it and when it fails for a moment your heart stops πŸ’” I cannot explain the panic that I felt while inspecting this crack. The thought of having to revert to injections and working out how much to have by calculator was overwhelmingly terrifying. 

I just have to pray that this pump keeps on kicking until my replacement arrives in two days πŸ™πŸ»

Hope your all having a trouble free week πŸ‘ŠπŸ» πŸ’™

x Hope