Deciding to Move From MDI to Pump

*Deep Breath* where to start?

I guess a good place would be when I was first offered an insulin pump. About 6years ago (it may well be linger than this) I was told I would be an ideal candidate for an insulin pump and did I want one. I did some googling and found out that Nick Jonas (my icon for that month) had one, so of course I wanted one! It was after saying yes that I was told it would be $8,000 to purchase one and some other crazy number per month to keep it running. At that point coming up with $8,000 just wasn’t going to happen so I did a bit of inquiring into various foundations around and whether they would be able to help or not, I wasn’t met with enthusiasm and so didn’t proceed in any of my investigations. Basically a pump wasn’t going to happen so I began hating the idea, purely because I knew it wasn’t going to happen.

Over the years the suggestion of a pump came up frequently but I was still bitter at the fact that it was so expensive and I now had the added attitudes of my school peers, who, at the time felt that my having injections was ‘gross’ and treated me horribly for it. To me the idea of having something implanted in me 24/7 was just an added extra that they could tease me about. So I continued to refuse.

This continued in a varied fashion through to my late teens where, even though I was without a boyfriend, I worried constantly about what boys would think of my T1D and how they would react. I didn’t want to make myself even less attractive by having a machine attached to my hip. So still refused the offer of a pump, even though by this time they were finally funding pumps in New Zealand.

Finally last year (2014) I began to get involved in online groups for people with T1D. Those involved in these groups were predominantly from the USA and other countries were pumping is a common form of insulin therapy. I began reading posts about insulin pumps and seeing photos and memes popping up all over the place. The thought of an insulin pump became normal, not strange or weird. I began to feel like I could actually manage having one of these things. Later that year i had an eye examination, of which the results were not good and included leaking in one eye that was affecting my vision. My bloods were also all over the place! I was having 12+ injections a day to try and prevent peaks and troughs in my sugar levels but it just wasn’t working. While discussing this with the Prof, my Diabetes Nurse came in and I lost it, burst into tears and started begging for help because I was doing everything that I could and that they were telling me. (I think as a last desperate attempt) the Prof suggested a pump and too the surprise of him and the nurse I said yes, anything if it would make things better.

I think the combination of a pump now being viewed as a normal thing to me, not having a boyfriend and therefore not worrying what someone might think about me being rigged up to something 24/7, my feeling so sick all the time due to swinging BG levels, the bruises and literal pain of 12+ injections a day, and the damage occurring to my eyes had lead me to the point that I really was willing to try anything that would help make me better. It just turned out to be a pump.

So my nurse applied for the funding via the government funding department (I think that’s what it is) Pharmac and once I was approved all I had to do was wait for the next available training day to get fitted and learn what I needed to know to get pumping.

Moving from MDI to a pump is not a decision that I took lightly, a lot of thinking went into it before I went to visit the Prof that day and a huge amount of research and talking to people all over the world went on after receiving funding. I think I’ve made the right decision, but only time will tell.

I am now pumping but I will keep all of that for the next post so as not to overload you πŸ˜› If you are considering a pump and want anymore information please feel free to ask, I’m more than happy to answer and attempt to help if I can πŸ™‚

Hope

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PancreaticallyChallenged – YouTube

And so I started a YouTube channel…

I’ve been doing a great deal of YouTubing recently and I have realized that there are no (none that I could find) YouTube channels about type 1 diabetes (T1D) in New Zealand or for New Zealanders (kiwi’s).

In New Zealand we have quite a different system when it comes to health care and in particular diabetes care. It is fantastic to see all the American and English ones! I really do appreciate them but at the end of the day what is available there and what is available here are quite different. So I started PancreaticallyChallenged.

My plan for this channel is to be a place where people can ask questions about T1D and get a really honest answer. I’ve found that often people are either too scared to ask or don’t know where to ask. So this gives people reasonable anonymity to ask and a place to do so.

I have only managed one video so far, it has been the holidays (dreadful time to start YouTubing!) but hopefully it will continue from there. I will also blog here all the extra details for the videos.

If you would like to check out my first video you can do so bellow and if you have any questions or ideas or videos please comment with them bellow, I would love to hear them!

https://www.youtube.com/watch?v=Vtrd2TDxMnw

Enjoy guys!

An Article in the Local Paper

During November (Diabetes awareness month) I was interviewed by a lovely journalist from the Otago Daily Times (ODT) our local news paper here. I was interviewed all about my type 1 diabetes (T1D).

I was so nervous! I wasn’t sure what she was going to ask and then there was the uncertainty of what she would actually write and how she would portray me…and others with T1D. I felt like I was being placed with such responsibility to make sure that the correct things were being heard and understood about T1D but at the same time I felt I had no control over any of it!

The journalist and I spoke for about an hour, about everything! From hospital appointments to how T1D affects friendships.

This is the article that was published as a result.

http://www.odt.co.nz/lifestyle/magazine/328536/fear-blindness-wake-call-diabetic

Hopefully if I have done this correctly you can just click the link above Β and it will open in a new tab!

I thought I would put it up here to give you all: a) a chance to read it and b) a place to ask me further questions should you have any. I really hope that you enjoy reading this and please feel free to ask any questions about anything, if I can help in anyway I’m more than happy to πŸ™‚